dear diary ~ the ups and downs of life

Just thought I would drop by and say hi….it has been awhile I know but there are reasons for that which I will explain as we go along. Due to time constraints this is a post that has been written on different days, in different places over the last month or so and I hope today I will press that publish button!

The first instalment written in Scotland in the middle of June as we escaped for a few days break.

What a glorious summer, though a little more rain would not go amiss. Most years I wait eagerly for May and June to come along and then they are quite over before I feel they have even begun.

I am sitting here in a shady part of the garden in Scotland relaxing as I write this post with a glass of cool ginger beer watching the sand martins busily darting here and there, the sea is a deep azure colour with gentle surface ripples rather than waves and it feels like paradise could not be much better than this.

There is a down side to all this perfection of course and a reason I have not been posting for over a month – life here has taken a bit of a down turn –  though in and amongst, as in most cases, there have been moments of sheer joy.

So perhaps the good news first….

….starting with the birth of our new grandson on the 21st May and the celebration of DH’s 70th birthday on the 25th.

May birthdays, I always think, are special – midway between spring and summer with prolonged warm days, longer lighter nights and gardens that are in full bloom. What could be more wonderful and uplifting?

It has been a long process deciding on a name for the new baby and for the purpose of my blog I will be referring to him by the preferred name of Master Freddie, his older brother, as ‘baby Chocolate’ (and before you ask I have no idea where that came from but it goes well with our second granddaughter’s pet name Sweetie chosen by her big sister Little L).  Both mum and baby are doing well and managing the challenges that come up daily when you have a pre-schooler to look after at the same time.

To mark DH’s birthday we spent the day at York Garden in Adel on the outskirts of Leeds.

With the birth of the baby originally scheduled for the 24th I had not been able to book a weekend away or organise a large party for him with friends so a day out to a place of his choice seemed the next best thing. As a birthday treat we decided we would eat lunch at their cafe rather than packing up a picnic as we would normally do these days.

However, like all good plans things often don’t work out.  We arrived at the garden at midday, paid our entrance fee and just as we approached the cafe door a lady barred our way and said ‘sorry the cafe had to close for the day due to unforeseen circumstances (technical issues) beyond their control’. So back to reception to ask where we might get something to eat and would they let us back in without paying again. Following their directions we drove up the road to Golden Acre Park where we were told we would find the council run cafe. It was basic and not quite what I had in mind for a special birthday treat but it did the trick and after a plate of sandwiches and a drink of tea we went back again to the gardens and spent a lovely afternoon wandering around taking lots of pictures and gathering plenty of ideas to try in my own.

A day or two later on the following Bank Holiday weekend our younger daughter came to stay with Little L and Sweetie and we prepared a simple tea party to celebrate DH’s birthday and the birth of the new baby with the family. 

The grandchildren helped me prepare the party during Saturday for Sunday. They decided on a Spaceman theme for grandad! They had great fun colouring in some new place cards and party food labels using some space themed templates I printed from the internet and whilst they were occupied I set to and made some cheesey leek ramekins ready to bake later in the oven.

Everyone lent a hand in preparing a simple buffet of sandwiches and salads to go with the ramekins, and for afters nothing beats strawberries and fresh cream with jelly for the little ones.

And no birthday would be complete without a cake – a lovely summery fresh cream and strawberry sponge made and decorated by the children specially for their grandad.

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And that was were the fun ended and the next few weeks of total chaos began.

I am now completing this post while staying in my mum’s flat near Yarm in North Yorkshire. She is not here at present as she unfortunately fell on her back in her kitchen the day before all our celebrations but we were told by the doctor and district nurses that she was OK – it later transpired that she wasn’t and is presently in a care home after a two week hospital stay. Hopefully, the care home is not for good, but as yet we don’t know.

It is hard for me to write this as I feel very let down by the whole NHS system – it is not just broken it is in a complete mess and so frustrating to get any honest information from anyone. This is nothing to do with the nursing staff – some of whom have been marvellous (and one we will be nominating for an award) although there have been a few along the way where delivering care to the patient is not foremost in their duties.

Sitting for hours with mum on the ward it was hard not to overhear the discussions by the staff over their patients. The lady in the next bed to mum was actually diabetic – the nursing staff did not realise until she was being prepared for discharge. She had been in there 5 days and in all that time her levels had not been taken. She had respiritory problems and was permanently on oxygen but the hospital staff then found they had been giving her double what she should have! My mum was in for almost 2 weeks and came out with a pressure sore but this was not documented on the hospital discharge letter, (but noticed by the care home staff on arrival at the home), and she had not been transferred to a pressure mattress to alleviate it. On the first night of admittance to the emergency assesment ward at about 11pm after being in A&E since 4pm the porter had to make the bed for her, there was no pillow and I had to use my folded coat until he managed to find a blanket as a temporary substitute – no nurse came to introduce herself and no one asked if she had been given a drink or any food and we had to leave her like that. In the morning when we went back a pillow had been found (just the one as they are apparently short on pillows) and at meal times there were not enough forks so the patients had to use their pudding spoons. I will not even comment on this!!

In all, over 5 days after the fall my mum had six attendances at home from paramedics and health professionals responding to my 111 calls and the telephone assessments and all of them attending her had differing opinions. She was taken to A&E twice – released the first time and hospitalised on the second. The initial x-ray showed no break and her hip fracture was only picked up on a scan on the second admittance to hospital (the pain she was in being totally disregarded). In fact the very first call I made to 111 prompted a home visit from a ‘medical professional’ and after his examination and assessment diagnosed a hip fracture but this was never taken seriously by the variety of medics, doctors and therapist who saw her after this.

She is, as many readers will know, 97 – she is in pain, she is confused
(though doesn’t have dementia) and she has no idea what is happening or going
to happen and to be fair neither do we. There are so many people involved –
district nurses, care workers, community therapists, social workers and so much
jargon. She has had endless assesments over and over and for what we have no
idea either. And at the end of it all everything comes down to funding – or
lack of it….but part of the problem is that they waste so much money.

On top of all this my mum is not an easy person and is convinced that she
must lie completely still in bed for her hip to mend but the reality is she
needs to keep moving and do exercises to keep her muscle strength but she won’t
engage with the physiotherapists and keeps sending them away saying she is in
too much pain, too tired, too hot, too cold …..

The care staff are not allowed to get her up and out of bed as this is only
done by the physios but so far they have only managed to get her sat on the
edge of the bed….once! Her 4 week NHS funding for this assessment/ rehab bed
ends next week, the physio involvement will diminish considerably if she
doesn’t co-operate and it is looking like she will be permanently in a care
home and bed ridden for the rest of her life. To say I am frustrated is a bit
of an understatement and I am now at a loss as to how I can motivate my mum to
help herself.

All I can say is never be ill and end up in hospital!

10.07.23 – Further update

It has been a long 6 weeks now and I am totally exhausted spending a few days in North Yorkshire then a few days at home and grabbing bits of time to help my daughter out with the new baby by having Freddie for the day. Last Tuesday Mum was assessed again by the social worker as needing a further short term placement at the care home – for which she will now pay privately as NHS funding stopped after 4 weeks. Her room is well over £1000 a week and we still have to pay the service charge on her flat as well as a retainer for her home carers until she can go home or goes into permanent care. Before the new government rules applied (where long term patients in hospital are now transferred into care homes) her hospital stay would have been covered under the NHS.

We have had a small break through and at last they have got her moving just a little and she managed to sit in a chair for a short time this week but is not allowed in a wheelchair yet. She has had a urine infection this last week which has caused paranoia and delerium (which is not a nice condition for patient or relatives), mum was ringing me constantly on the phone from 8pm to after midnight because she couldn’t find her buzzer to alert the staff. It was just by her hand but with her confusion could not recognise it. At least that is under control now but she has been told she rings for the staff far too much and is very needy (thats my mum!).

We are at home for a few days now catching up with household things here but we did have a day out to ourselves last Saturday and went down into Derbyshire to the Open Gardens in the village of Eyam. A very interesting place and hopefully if time allows I will share a few photos in my next post.

Thank you to those readers who have been concerned about the long gap and have contacted me and welcome to my new readers who have signed up during my absence and I apologise for the rant and negativity that you will have found in this post – normal
service will resume soon I hope.

Sorry about the wierd spacing near the end of the post something happened when I tried to save it and I don’t have the energy at the moment to alter it!

And to all the bloggers I usually connect with and have not, as yet, caught
up with I hope you are all well and will be hearing from me soon. x