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dear diary ~ finding my way back

I have been quite neglectful of my little space here recently….time has just evaded me.

As much as I have wanted to write, and the intention is always there, somehow I just never found that moment….and then when I did WordPress decided it was not going to let me preview my posts. But all good now – I solved the problem before they did.

A lot has happened since my last entry and thankfully I do manage to keep my little journal going that sits by my bed and is a useful memory bank and reminder of why I am not finding the time to write here very often.

I have no doubt that followers, readers and fellow bloggers will be eager for an update just as I am when someone disappears off the scene for any length of time – and I thank those of you who have been in contact, checking I am still here and OK.

And now for the news.

Mum is home now and settled back into her little apartment. It was touch and go whether she would leave the care home or not but she decided to give it a try and in fact we found out during the arrangements that due to the possibility of requiring council funding in the future she had no option but to go back home (*see more details on this below).

She came home on 18th September and from then ’till now she has taken this long to settle in (well as much as she ever will). I do not like to speak ill of people but the social worker appointed was next to useless. One day out of the blue in August I had a phone call from her to say she was going to carry out an assessment on mum and could I be there. Well given I live 90 miles away and she arranged this assessment for 9am one morning, no I couldn’t and my sister was away on holiday too so she couldn’t attend either.

The social worker chose not to rearrange for a time convenient for us and saw mum on her own. Once again she, as the previous social worker, assessed mum as having capacity (which I always question as she cannot retain or undersatnd a lot of information). She assessed her as being able to go back home but NOT requiring 24 hour care even though she had 24 hour care in the care home and required help to get to the toilet in the night. I believe this assessment was more to do with the fact that the council will not provide or pay for 24 hour care outside of a care home if mum wasn’t able to pay her carers privately.

*The shocking side of all this, which mum’s social worker just ‘happened’ to mention and I hope anyone in our situation will take note, is that if an elderly person is assessed as not requiring 24 hour care and they themselves decide they would prefer to be in a care home which is of course 24 hour care and then they become eligible for financial help provided by the local council (once the magic figure of £23,500 of savings has been reached) then the council are not oblidged to step in and pay for your 24 hour care if you were assessed as not needing it. This is very worrying for anyone who does not have enough savings to pay their way privately.

Once the social worker had done the assessment she promptly went on annual leave for 2 weeks without putting in place a leaving date for mum and this cost us another £2,000 in care home fees for a further two weeks delay. It would have cost us over £4,000 as the care home work on a 4 week notice period but the manager decided she would waiver the 2 weeks after mum left because of the failing of the social worker to act promptly.

When the social worker came back from holiday we set a date for mum to leave (Monday 18th September) and she said she would make all the arrangements for a home care package and transport to be in place for that day – which was the following week. Luckily, I rang social services on the Thursday (four days before my mum was due to go home) for an update as I had not heard anything and found that the social worker was not only on holiday again but had done nothing towards getting my mum home. It was now urgent that something was done but social services would not supply another social worker to sort this out so I had to do all the arranging with the care agency and book transport myself with the help of the admin clerk in the social services department who stepped in and was a great help and could only apologise for the social workers lack of arrangements.

Mum now has a care agency going in four times every day as required by the social workers assessment. Her first visit is at 9am when the carer goes in to get her up, washed and dressed and on her last visit at 6pm she is put to bed – which is quite early for mum but the only time the carers had available. She has to eat her lunch around 11.30 and her evening meal around 3.30 when she has the other two visits from the carers during the day. After the last visit she spends 14 hours on her own with no one to help her until the carer appears at 9am again. During this time she cannot get a drink other than water at her bedside, if she is cold she cannot put her heating on -she can just about get herself out of bed to the commode beside her. If she falls or has an emergency she can use the call button she has around her neck. In the care home of course she had a buzzer to summon help to go to the toilet or get a drink made. It is all very sad and this is happening to elderly people up and down the country.

My sister continues to visit her on Tuesday, Thursday and Sunday and cooks ready meals for her feezer, does all the washing and cleans throughout the flat. She works full time and has to do her work in the evening on the days she visits in the week. I ring mum every night and visit as often as we can to help my sister and ease mum’s boredom but she is definitely getting worse with her memory and her anxiety levels become so high when my sister is away that she often won’t get up and says she feels ‘off colour’ so the carers will leave her in bed as she feels safer in bed when my sister is away.

Mum pays for her care privately at the moment as she has savings above the £23,500 magic threshold – it costs her almost £800 for the week. Yes you read this correctly! Plus she has all her bills and food on top and the service charge for the apartment and council tax. The care home in comparison was £1090 a week but it was all inclusive and it was one of the cheaper places around Yarm – most of them are about £1,300 to £1,500 per week and this is only if you do not require specialist nursing care or have dementia.

If the local council do have to help with the fees their contribution is of course capped, so if you choose a more expensive place then relatives are expected to put in the additional money called a topup.

My advice is not only to start saving now for your old age but to keep fit and healthy so you can look after yourself as long as possible!!

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Our life of course is not all about mum and we have had little snippets of time to take our new baby Chocolate to the park once or twice and we had a free admission day to the National Trust property at Dunham Massey.

During the school holidays we all went to see a local Halloween pantomime called the Haunted House put on by a group of amateur dramatics in the next village. It was exceptionally good – though my back was exceptionally bad and has been recently with a lot of travelling up and down to North Yorkshire to see mum. After the panto we all came back to my house for a buffet tea and the grandchildren had spent the morning making (what has now become a bit of a tradition here) place name cards – in the theme of Halloween.

Granny was a pumpkin.

We had another invasion two weeks later when everyone decended upon us again to celebrate Sweetie’s 5th birthday. She is quite taken with Hello Kitty and my SIL manage to find some stationery from the Hello Kitty era when her girls were young. We made chocolate buns with Hello Kitty toppers and of course more named place cards.

On a cold Saturday evening in November we had a little adventure with master Freddie and baby Chocolate (who slept through the whole event) in Cliffe Woods at Clayton West a village near Denby Dale (of the pie fame and not too far away from us). The event was named ‘Light up the Woods’ – a firework free zone – a trail through woodland that was alight with a wonderful display of recycled rubbish made by local groups and school children.

Since then I have been busy crafting and other such delights and all being well I should be able to give you a glimpse of my ‘efforts’ in the next few days.

Hoping you are all well – I can see most of you are happily blogging away and I am slowly catching up and you may even get a comment or two.

Until next time ……xx

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dear diary ~ the sound of emptiness

I felt an overriding sense of sadness yesterday knowing that the grandchildren are now in school and my house is so very, very quiet. No little voices saying ‘granny can I……’

Over the summer months I have felt like I have been living in Legoland whilst every flat surface has been claimed to display one or other of the Lego sets that once belonged to my two daughters. I had the good sense to squirrel them away in the loft when they left home for such an occasion as having grandchildren. We have the airport, police station, fire station, restaurant, riding school, hospital and chalet and the grandchildren have just loved building each one with some expert help from grandad the architect.

Over the last 2 or 3 weeks we also introduced them to the fun of a nature walk, gathering blackberries to make crumbles and searching out bits and pieces for granny’s nature table – swapping out the beach pebbles and shells for pine cones and sycamore keys and discovering magical things like skeleton leaves. I especially love displaying our autumn finds with the earthy colours and lots of textures. I didn’t have time to glycerine the leaves though so they will soon shrivel and crumble away, but no matter part of the fun was in finding them. I am watching the laden Spanish conker tree that is overhanging the wall in someone’s front garden on the way to the village and waiting patiently for the first ones to fall onto the pavement.

I am already missing the energy that they bring to the house but Sweetie left me with this lovely picture she made to cheer me up.

Yesterday morning we deposited DH’s car at the garage and then went to Sainsbury’s for some food. We each have a trolley and do a scan shop so that we can take advantage of all the smart shop reductions, the general nectar reductions and the nectar points, but it is hard work co-ordinating everything. Often for the same item DH will be given more points than me or vice versa, so of course we use the nectar card that will provide the better reward. Being as frugal as possible takes a good deal of time.

When we arrived home on Saturday we had very little in the fridge and no fresh fruit and veg but luckily the pantry is well stocked with tinned and dry goods and we had bread and a pizza in the freezer. It is good to see the fruit dish full again and although I have a few tomatoes ripening in the garden (I bought Totem patio variety again this year and mine are the assortment of sizes below) we needed to buy extra so we can make soup. This week the large Jubilee variety were on offer – excellent for tomato soup and DH got points for the cherry vine ones.

I often make ice lollies to keep in the freezer from cartons of juice for the grandchildren and these packets of Cawston pressed fruit caught my eye – no added sugar or sweeteners and of course so much cheaper than buying lollies.

Sainsbury’s is currently having a sale on homewares and electricals. I am now on the lookout for little Christmas presents and these two items caught my eye. I think I might make up a little basket of a bottle of homemade drink and some nibbles to go with these little wooden coasters and I will make table mats with the tea towels. The coasters were reduced from £8. to £5.33 and the tea towels £6.50 reduced to £4.33.

Looking through the old photos for yesterday’s post I came across this one from 1966 which made me smile. I mentioned in recent posts that I am always left pushing the pram when we go out with the family (I love it of course) and this picture shows me in training when my younger sister was born. This is certainly a vintage pushchair haven’t they changed so much over the years? This one no doubt would have been second hand like the cot – people didn’t often buy new in those days.

I would have just finished my first year at grammar school when this was taken so would be about twelve and my dad had bought me my first sewing machine a year before because I was mad keen on sewing. Mum of course would have knitted the cardigans. I cannot believe how young she looks here. I remember making my sister’s little dress from this pattern – I think my gran made mine (she was a tailoress by trade and started me sewing at age 6) – the A line and shift styles were so easy to make I was soon making my own dresses and a few tunic tops for my mum and a neighbour.

Not only does the house seem empty but I too feel empty – I didn’t sleep well last night as my mum is constantly on my mind. The social worker had another meeting with her and the home care carers yesterday and of course being so far away I couldn’t attend. Although the social worker said she would ring and update me afterwards it was perhaps too much to hope she would contact me straight away. I am concerned that she has got everything in place for mum to go home next Monday and that she has rung to check that the lift is now working in the apartment block where she lives as it has been out of order many times recently.

Since all this started with mum’s fall back in May I have had to keep notes of every conversation that I have and jot down who with on what date at what time. It is exhausting. I feel like I am always chasing and complaining and that isn’t who I am and it is making me feel like I am a bad person. It appears unless you get a bit stroppy nothing gets done.

I think there are many people going through the same issues with the care system. It is not until you are involved that you realise how complex and useless it is. I am so worried now about DH and I becomming ill and what our daughter’s might be up against in the future as we age (which inevitably we will do). Something needs to be done but who is going to listen?

It was quite heavy rain yesterday and much cooler, quite refreshing really and the dry borders will be well soaked. To help cheer me up DH made a hearty leek and lentil stew for our evening meal which we had with a crusty roll – proper comfort food.

Oh well…… here’s to a better day today. x

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dear diary ~ end of an era

A day of drizzle yesterday, but that was fine for me after all the hot, humid weather. We looked after Master Freddie for the last time on a weekday as he starts school today and it is such a painful parting knowing that it will only be during the school holidays and weekends that we will be able to look after him and take him out. Sweetie who is a similar age started school last week so with 3 of the 4 grandchildren now in school it is the end of an era for us. Of course we have baby Chocolate and no doubt we will be pushing the pram round the streets to the park as we did only 4 years ago with Freddie and Sweetie.

All through the hot weather I have only been doing jobs that have required minimal exertion – I am not sure if contacting the social worker meets this threshold as I know my blood pressure will rise during the conversation and often I am on the verge of saying something quite rude as the frustration with them increases. I only want what is best for mum and to keep her safe. On the other hand they pretend that this is also their aim but in the end it is the financial implications to the council that will actually determine this.

If you happen to require a lot of medical attention as a baby in intensive care it is most likely provided despite the cost…but fast forward to the last years of your life when you are equally frail and vulnerable and the care is not quite so forthcoming. This not to say that the carers themselves do not care – they do and are heroes – elderly people are not quite so cute and cuddly as a baby and the whole set up in care homes and for care in the home is grossly under resourced and underfunded. I only hope the powers that be that set the rules and guidelines experience the difficulties my mum is going through.

It was my late dad’s birthday yesterday (sadly, he shares the date with the 7/11 disaster), he would have been 101 had he lived. He was such a caring, gentle man and I still miss him everyday seventeen years on.

This is him with mum on their wedding day in 1946

The wedding took place at Wadsley Parish Church in Sheffield.

and my wedding day in 1976

and their Golden Wedding anniversary in 1996.

Sadly he died a few months before his Diamond Wedding anniversary in 2006.

Mum, bless her, never even mentioned him – she is far too involved with her own troubles at the moment to even remember. I thought it best not to mention it so she didn’t get even more upset. She would normally have remebered her wedding anniversary day too back in August but again the date never registered with her.

Before I went away I managed to get all our finances up to date but already after the space of a week the pile is growing. I have various bill payments to set up online and contact the Skipton yet again about my ISA account which should have been transferred back in March to a higher paying interest account and it was overlooked at a great loss of interest to me. I did get to change my mobile provider from Vodaphone to Lebara (who piggy back on Vodaphone). My rolling contract has increased data for a lower monthly payment.

We have absolutely no fresh veg in the house other than a few potatoes and a handful of tomatoes from the garden. I am not looking forward to going shopping this week, in fact we really need to have a spend free month to offset the enormous petrol costs we are incurring going up and down the 90 miles to see mum. Whichever shelf or aisle you look down at the supermarket I think the average price for an item is now hitting £3. We take advantage any offers that come our way but even this is not reducing the weekly spend on food or toiletries. You can scrimp and save here and there but the minute you go out for the day and buy ice creams or a drink out you are looking at handing over that £20 note and not receiving very much change. The ice creams for 6 of us at the National Trust shop came to £16.20. There were no childrens cones just Magnums, Cornetto’s and those little, even more expensive, tubs of award winning ice cream.

Today we have to take the car back to the garage as for some reason during the hot weather the car fails to start until we open the bonnet for 5 minutes and then it is fine until the next time we stop and park the car!

Despite the hot weather Autumn is advancing so I need to begin clearing up in the garden. I did an hour of tidying in the greenhouse on Sunday and I now have a stack of seed trays and small plant pots to wash out and dry ready for next year. I did quite a bit of clearing in the shaded part of the garden too – cutting down perennial flowers that are definitely over now. Some of them have regenerated like the catmint that I cut back before our holidays but the majority are well and truly over. The string of solar lights didn’t even come on last night because it was mainly overcast all day so I will probably take them down, clean them up and pack away for next year too. I might leave the compost turning to DH after I empty the side that has the well rotted compost, this warm weather has created such a wonderful rich, dark, crumbly compost which I am adding to the borders as I weed them.

For anyone who is having difficulty leaving a comment and I know there are a few readers who are – to find the comment box you need to click on the post title and it takes you through to the comment page. You do not have to leave your name and email but I believe it is better if you do.

I am having a lot of trouble commenting on Blogger blogs as I usually sign in with Google and I often have to click on the Google option a few times before it brings up my name otherwise it stays as anonymous.

Back soon, take care x

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dear diary ~ back and forth

Gosh, just when you think life can’t get any busier….it does and hotter too.

On Bank Holiday Monday we took Little L and Sweetie out to Bradfield in Derbyshire. It is a beautiful Peak village and a conservation area. There is a place down by the river to picnic and paddle – our family have always gone there, my mum as a little girl, me and my siblings, our two daughters and now the grandchildren. We had a lovely day splashing about in the water and collected so many interesting things for granny’s nature table.

We spent the rest of the week, after they had gone back home cleaning and packing for the upcoming trip to North Yorkshire last week to stay with my younger daughter to lend a hand with Little L and Sweetie on the school run.

Sweetie started school last Tuesday but for some reason her school have a policy of only taking new reception children for half days…and alternating mornings and afternoons for the first week. This is not only very difficult to arrange for working and single mums but confuses the children no end. Sweetie has no concept that she will be spending a whole day at school next week and having school dinner there. She thinks granny will be providing lunch and taking and fetching her back at all odd times! Whilst I waited at the school gates it was obvious that many working mum’s couldn’t be there for their children on their first day and had to depend on a mix of grandparents, friends and even neighbours to help out and get their little ones to and from school at the appropriate times.

Master Freddie on the other hand, at a different school, starts on whole days straight away but does not start until this coming Tuesday (one week after the main school returned from the summer) – again very difficult for working mums, especially those like my daughter who work within the school system so cannot take time off. The gradual introduction to school is not practised everywhere and the irony is that most of these kids have been spending far longer hours in nursery than they will at school – Master Freddie will be at school 4 hours less and will feel it is a very short day indeed.

Whilst up in North Yorkshire we visited mum on a couple of occasions and she was in tears most of the time. The social worker who has assessed her as having ‘capacity’ and told her she could go home then went on holiday without arranging any care package or making a date for her leaving. So in the meantime mum has been very anxious and one day wants to go home but the next day wants to stay in the care home as she doesn’t think she will cope at home. She has been assessed as needing four care visits during the day but no overnight care so that will take some getting used to as presently in the care home mum can press the buzzer for help if she needs assistance during the night.

Mum is presently self funding as she exceeds the threshold where the local council have to step in and foot the bill so of course the social worker is in no rush to get mum home as it is mum’s money paying the care home bills. Whilst on the short term placement we have been paying in arrears and only oblidged to give one weeks notice. Now the social worker has assessed her as being able to go home this arrangement seems to have terminated and the care home have billed us for the whole of September in advance and we have to give 4 weeks notice. So it might be the end of October before mum can go home as the social worker has not arranged a care package and been able to supply us with a date for leaving so that we can give notice. This will cost mum around £9,000. Of course there is no urgency for the social worker to get this mess sorted as the council are not paying!

I have also been told by social services that if mum did choose to stay in the care home and then her savings fall below the threshold the council would not pick up the bill because she has not been assessed as needing 24 hour care. I rather think she has not been assessed as requiring 24 hour care because they cannot provide her with 24 hour care when she goes home. So it appears that mum will have to go home even if she would rather stay. If ever you have the misfortune to be caught up in the care system you will find it is all about the financial implications to the council and not about the best care of the elderly and vulnerable.

I have no doubt I will be on the phone for most of the week trying to pin down the social worker as she is back from her hols.

It is Heritage week this week and I have made a note of some of the interesting places we might visit. Yesterday we went to Beningbrough Hall (a national Trust property to the north of York) on our way home. My daughter, Little L and Sweetie came with us as it was free entry under the Heritage scheme. We had a little picnic in the shade and then explored the grounds and house. They have a rather unusual tower in the grounds beside the lovely play area for the children in the woods, but I was disappointed that the only water on offer at the cafe was £2.50 a bottle!

I do have plans for the coming 2 weeks where time allows, and hopefully it will not be as exhausting as last week. After all the unpacking, washing and ironing the garden will have priority – weather permitting, and I would like to put another maintenance coat of paint on the shed and greenhouse before the winter. We desperatley need a new garage door too and have arranged for a local company to come and quote.

As far as the house is concerned I would like to give the office / craft room a good clean and I do need to make a few more cards mainly to try and use up some of the card blanks that I bought.

I hope you all have a good week and enjoy the weather – it is a touch too hot for me and gardening might have to be kept to a minimum.

Thank you for all the comments on my last post and thank you Rachel for getting in touch and your concern – I will reply to your email shortly. There is no denying that having blog friends in tough times does help. xx